The Honeymoon is Over….

  • The Honeymoon is Over….

    Posted by Dana Acker on October 9, 2023 at 3:17 pm

    Hey there, Well just when I was ready to brag to you how great the hospital services had been throughout this ordeal, the Medical Industrial Complex strikes again. Trish has had a rough night last couple of days. She is mostly confused. Her nurse doesn’t seem too concerned about that given the brain surgery, and her other health issues. I’m quite concerned at her swelling. She is badly swollen all over. I have never seen her arms and legs as big as they are today. I asked the nurse to have the doctors put in for a Heart Failure consult, since she has been a Heart Failure patient of the clinic of this hospital for a decade. The nurse said they may start some Lasix to get the fluid off, “may” being the operative word. From what they said it sounds as if she has gained close to 20 pounds since coming in a week ago. She looks more than twice her normal size. Her breathing is very labored as well. We’re putting pressure on them to do something, but the nurses’ hands are tied, and we never get to see the doctors, as they come all hours of the day and night. As the day progressed, there has been a lot of change and nothing demonstrative being done. I raised hell because for some inexplicable reason, the attending doctors just would not call in the Heart Failure doctors. Like I said, Trish’s gained 20 pounds in a week, and no one seems to be concerned??? Like that’s normal for a person who isn’t eating more than a child’s portion of food only a couple of times per day. I finally used the “malpractice” word, and threatened to go the top executive if I had to, to get her the help she needs. It’s ridiculous that we should be charged the amount of money that we are, and we have to do the bloody doctor’s job for them. It’s a good thing I’ve not run into the attending physician otherwise I’d be starting a Go Fund Me Page to bail me out of jail, and there’d be sad singing and coffee drinking over some no account doctor’s dead ass. Other than that, “Happy Happy Joy Joy!” “Aside from that Mrs. Lincoln, how did you enjoy the play?” The twenty pounds she gained this week is, without a doubt, from fluid–what her Heart Failure doctors deal with. Until a few minutes ago the doctors attending her have refused our request to have Cardiology get involved with her care. Her hospital docs are not Cardiologists. I threatened them with hell to pay retribution if anything happened to Trish as a result of their negligence, and it finally got their attention. Trish looks frightful. She “looks” like she weighs 400 lbs–all from fluid because they withheld her fluid medicine because they know nothing about Cardiology (normally she weighs less than 160). Cardiology has finally stepped in, and is actively removing fluid from her, while monitoring her kidneys etc. That is a good thing. But the struggle was intense to get her the care she needed was intense. I’m sure as a result, I’ve been removed from several peoples’ Christmas lists for my lack of tact and diplomacy. I’m reminded of Robert Earl Keen’s song, “I Only Use My Gun Whenever Kindness Fails,” but I digress. Bottom line, no fever, fluid is coming off, and there’s still some confusion. As I was writing this, Physical Therapy came by, and waking Trish from a nap, found her unresponsive. She was OK before she went to sleep. Her blood pressure is very low—double digits over double digits. They are rushing her for another CT scan of her head, then possibly back to ICU. Gotta go. More when I know it! Thanks, and much love!

    WaywardSon replied 1 year, 8 months ago 27 Members · 27 Replies
  • 27 Replies
  • josh

    Member
    October 9, 2023 at 3:26 pm

    Hang in there Dana. You are doing a great job for your love. Don’t let the fuckers get you down. I pray God gives you strength at this trying time. Be well.

  • kathryn.cascadiankate

    Member
    October 9, 2023 at 3:49 pm

    If they pulled out that much fluid, her electrolytes would be off. Will add some prayers for her directly and removal of any medicos wanting to tag her w covid and get the full bounty. Also, you need a champion to lean on the doctors so this gets their attention and wisdom.
    So sorry she had the fluid issue…that is so painful. Much love KBT

  • Karen

    Member
    October 9, 2023 at 4:28 pm

    I’m praying for you & Trish…and for wisdom for all involved with her care. Dana, decades ago, my mother was on fluid pills, for heart failure. Took her to hospital when she too wanted only more sleep, and showed signs of confusion. ER couldn’t get a read on blood pressure, as it was too low to read. Long story short….the heart needs calcium, magnesium, and potassium. Too much, or too little have same symptoms . Mom was low on the mag, found after bloodwork. They got an IV started…and in a few hours, she recovered fully. Have they checked Trish’s Blood for these ? (No reply needed for me…I just hope it will help.)

  • Rick

    Member
    October 9, 2023 at 4:42 pm

    Continued prayers. 🙏🏻

  • Audrey

    Member
    October 9, 2023 at 4:46 pm

    🙏❤️ Thinking of you and Trish..keep on those bastards

  • Fomalhaut

    Member
    October 9, 2023 at 5:15 pm

    Keeping you both in my prayers. You are doing a good job advocating for Trish. Hoping you have a lawyer friend who can help you to lean on the doctors. It seems they only reply to a big stick. 🙏

  • LightsOfAbq

    Member
    October 9, 2023 at 5:49 pm

    Praying for you all. I know when my dad was in the hospital this summer I was beating the war drums daily telling them I wanted a “care conference”. Basically it’s a sit down with the entire medical staff that’s got eyes on her, from surgical team and infectious disease to the cardiovascular team and the ICU team basically just looking to get everyone on the same page. From my understanding, legally they have to provide one but they will do everything possible to try to get out of it and they did with us. Ultimately we never got one, but telling them multiple times a day made them realize I wasn’t going anywhere and they better get their shit together. God speed, Dana.

  • delores.goetz

    Member
    October 9, 2023 at 6:18 pm

    We are keeping Trish and your family in our prayers. Keep fighting for her care

  • Ian

    Member
    October 9, 2023 at 7:46 pm

    Sad to hear, Dana, tough times indeed. Makes you wonder if these “doctors” have any clue of what they are doing. I can only presume an IV drip is the fluid that is the cause of the swelling – what’s in it Gatorade? My choice would be pure, clean, mineral water. Such an ordeal for for both Trish and yourself – hope someone turns up who can help, as it sounds like these idiots are only making things worse.

  • Betsy.Ross

    Member
    October 9, 2023 at 8:00 pm

    Joint Commission. I’d do a tap dance on the hospital administrator’s desk and threaten him with losing hospital accreditation if nothing was done. You have to be your own medical malpractice attorney, too. Please keep us posted, Dana, and prayers are continued for you both. ❤

  • LuLuNose

    Member
    October 9, 2023 at 8:31 pm

    My heart goes out to you Brother.

    Remember, All you can do is your Best … Follow your Feelings and Heart … don’t be afraid to talk to people and ask questions.

    Sending energy to you and Trish!

    May God Bless.

  • Ellen

    Member
    October 9, 2023 at 8:36 pm

    Praying.

  • Carrie-in-Chicago

    Member
    October 9, 2023 at 8:57 pm

    Dana.. I’ve been offline till now… I am praying and concentrating for y’all… especially for your energy and focus… and for the morons you are dealing with to do the right thing(s) for Trish. Much love to you both.

  • Jun

    Member
    October 9, 2023 at 9:16 pm

    🙏 ❤<div>We are with you in Faith & Love.</div>

  • Op_Tweeter

    Member
    October 9, 2023 at 9:18 pm

    🙏🙏🙏 Dana. If this lack of concern occurred on a weekend , it’s not surprising. Sad. A 20# weight gain is a red flag. Weekend staff can be a different nonchalant breed. I unfortunately witness this mentality when I work a weekend at my area hospital. Keep on keeping on them Dana. They don’t like it. An advocate is as much a part of the health care team as anyone else. Send prayers for you both.

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